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Bailie,
Great news on the first round of results. Keep looking for the treatment that sounds right for you as it sounds like you have a little time before committing to the flag-ida approach.
Unfortunately relapse and protocol don't collide often in the MDS universe, so you are kind of on the leading edge of research and treatment. I admire your strength and courage throughout and continue to keep you and your treatment success in my thoughts daily.
Dan
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MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
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