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Old Thu Jul 30, 2015, 12:18 AM
Daughter-in-law Daughter-in-law is offline
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Join Date: Jul 2015
Posts: 2
End of battle/ support family can give

My father-in-law has MDS. His doctor has told his he has months left. He receives platelets and RBC twice a week. His platelet count Monday was zero. They are having a harder time finding him blood that his body does well with and he body is starting to reject his platelets. (i am not sure if that is the best way to say that) He is beginning to see new symptoms such as petechiae and mouth sores. He is starting to have pain and is having difficulty sleeping. We spoke to him tonight about starting hospice care. He was not quite ready to face that until now but we have looked into the best hospice provider and are ready to help him set it up. I know from my experience with a chronic illness that patient forums can be a lifesaver, literally and figuratively. I have been searching to see what we might expect in the coming weeks and tips or hints to keep him comfortable. If you can point me to a thread that covers this I would appreciate it. I could not find one. I would greatly appreciate hearing your experience and any helpful hints. I have had trouble finding information about the type of things to expect. Thank you so much for you time.
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