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Hi daughter-in-law. So sorry your dad has reached this stage in his MDS. My own father-in-law is fading away in palliative care at present, due to left ventricle failure and mesothelioma. It's sad isn't it. His brain is still good but he's just so weak now. He has been a wonderful replacement for my own father who died when I was in my early 30s and I love him dearly. You obviously care deeply for your f-i-law too.
Palliative care people are usually focused on keeping patients comfortable and they are experts at it so try not to worry. The main thing will be to be there even if just to hold his hand, have gentle chats and give him regular hugs.
Just wanted to suggest also that if you can get medi-honey it's very soothing for mouth ulcers.
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Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
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