Hi Catherine, I have to see the Prof again in 8 weeks and I'll try and ask him more about that drug trial then but I wasn't really interested because I have to agree to haveblood taken for genetic testing and research and I would have to pay $1200 per test to cover the cost of the research labs. Only after I had these tests and had the appropriate results would I be eligible for the trial. I'm not interested in spending more money on iffy theories that may and more likely, may not benefit me or any one else.
I'm more than happy for the research people to have my body after death if they think it will help research but I've had enough poking and prodding and spending my savings with no discernible benefit.
The Prof is not any easy man to talk to. He expects that when he says jump, that you say how high?. This is not my style and I can envisage a huge argument occurring f I have to visit him very often. The volunteer lady who escorted me to the lab for the blood test, told me that she gets on well with the Prof but when he gets all arrogant and bullying she tells him off, she also refers to him by his first name just to remind him that he is no different to any one else. She told me that almost everyone is scared of him. It's one thing to respect a persons knowledge and experience and another to respect them as a person and I don't respect him as a person.
I was supposed to have 2 weeks off treatment but the next week of treatment coincided with my doctor being away for 2 weeks, so my treatment was moved forward a week. So I have daily treatment again next week and the next lot of treatment will be due Christmas week.....damn.
You know Catherine it's not so much the copper deficiency that is the biggest problem, it's the other medical problems that can't be treated. I told you that the surgeon doesn't want to fix my hip, well, I also have a stomach problem and I had surgery many years ago, unfortunately that surgery has failed and I need to have more surgery. I saw the surgeon yesterday but he thinks I have an increased risk of a gastric leak due to tissue compromise because of the copper deficiency and he doesn't want to operate either. He didn't say no, but he said he needed talk to my hematologist and neurologist and get their opinion on the risks versus benefits. The condition in my stomach is precancerous so it's not as if the surgery isn't necessary. It makes you realize that everything is connected to the copper problem.
Oh well, I'll make myself feel better by going handbag shopping
Regards