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Old Tue Aug 30, 2011, 09:24 PM
Snuuze Snuuze is offline
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Join Date: Sep 2010
Location: Rio Rancho, NM
Posts: 50
Yikes! Do you guys really understand all the medical terminology? I can't tell you how many times I have read my BMB report and can always learn something new.

My situation is the reverse. I went from MDS to Aplastic Anemia with PNH thrown in for good measure. As far as I can tell, it's just a matter of fine-tuning the diagnosis. I have arrested development white cells, a few mature red cells and absolutely no platelets in my bone marrow. The no platelet condition caused the pathologist to change her previous diagnosis from MDS to SAA. The speculation is that perhaps I had AA all along, but the MDS symptoms were present as well.

I find it very difficult to wade through the medical terms and put into simple English for me to maybe understand.
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Sue, age 72; Dx 6/2010 MDS Int-2. Revlimid unsuccessful, began Aranesp 10/2010; additionally Dx PNH 2/2011, Soliris added 3/2011. ATG 5/2011, Cyclosporine 5/2011. Nplate 10/2011 to 10/2012 . Exjade began 12/2013 due to high ferritin level, discontinued 3/2014 because of increase in creatinine.
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