Thread: Exjade Rash
View Single Post
Old Mon Aug 26, 2013, 09:02 AM
Chirley Chirley is offline
Join Date: Oct 2007
Location: Logan City Australia
Posts: 1,100
I have very dry sensitive skin so I moisturise my whole body twice a day with sorbolene cream.

About five weeks ago my doctor also started me on Aristocort cream twice a day but I only use it once a day before bed because its a steroid and I don't want to use much of it and I don't want to go in the sun when I have it on.

The rash I get with the copper lasts about two weeks after the infusions finish, so as I have regular infusions, I never seem to be without a rash.
Copper deficiency bone marrow failure (MDS RAEB 1), neuromyelopathy.
FISH reported normal cytogenetics but gene testing showed
Xq 8.21 mutation
Xq19.36 mutation
Xq21.40. mutation
1p36. Mutation
15q11.2 deletion
Reply With Quote