Thread: Exjade Rash
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Old Mon Aug 26, 2013, 09:02 AM
Chirley Chirley is offline
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Join Date: Oct 2007
Location: Logan City Australia
Posts: 1,100
I have very dry sensitive skin so I moisturise my whole body twice a day with sorbolene cream.

About five weeks ago my doctor also started me on Aristocort cream twice a day but I only use it once a day before bed because its a steroid and I don't want to use much of it and I don't want to go in the sun when I have it on.

The rash I get with the copper lasts about two weeks after the infusions finish, so as I have regular infusions, I never seem to be without a rash.
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Copper deficiency bone marrow failure (MDS RAEB 1), neuromyelopathy.
FISH reported normal cytogenetics but gene testing showed
Xq 8.21 mutation
Xq19.36 mutation
Xq21.40. mutation
1p36. Mutation
15q11.2 deletion
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