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Old Sat Sep 6, 2014, 01:21 AM
Cheryl C Cheryl C is offline
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Join Date: Dec 2011
Location: Lake Macquarie, Australia
Posts: 830
Can't speak for the US of course, but in Australia, I think it would depend on the individual haem-onc specialist. I was blessed to have someone who was prepared to organise infusions for me in different hospitals all over Australia for 18 months while we were being grey nomads in our campervan. My responsibility was to let her know 2 weeks ahead which hospital I would be attending and the details for the specialist she would need to fax with my details. She would then contact the Red Cross to organise the infusion and the hospital to organise a chair for me.
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Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. On watch and wait since Feb 2012. IVIg 5-weekly. BMB Feb 2014 - no blast transformation. 2018 still stable.
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