Thread: A little lost
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Old Sat Oct 10, 2015, 07:10 PM
Cheryl C Cheryl C is offline
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Join Date: Dec 2011
Location: Lake Macquarie, Australia
Posts: 830
Hello Wynicurn - having recently lost my beloved father in law who was like a father to me, my heart goes out to you. In today's terms, your dad isn't even elderly yet. If he is able to make his own decisions without having to feel any guilt if he eventually decides not to cease transfusions, that's really good. Difficult and traumatic as it is for family, treatment for people who are terminal needs to be what will keep them happy and comfortable in their last days, rather than what keeps us as a family comfortable. God bless as you support him.
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Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. On watch and wait since Feb 2012. IVIg 5-weekly. BMB Feb 2014 - no blast transformation. 2018 still stable.
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