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Old Fri Apr 20, 2007, 11:47 AM
Marlene Marlene is offline
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Join Date: Oct 2006
Location: Springfield, VA
Posts: 1,406
Linda,

Have you tried procrit to see if it can bring up your red cells some? Procrit does help some people with AA. It's worth trying. It worked on my husband for about two years and others have had success with it.

Another avenue for you to explore if your AA approaches the "severe" stage is High Dose Cytoxan at Johns Hopkins. In fact, I would reccommend you look into it now so that if you need to start treatment, you will have done the research ahead of time. I think your local Doc is premature in telling you that you will eventually need a BMT. You may want to check out this site also. There are others with moderate aa that have posted there.

http://www.aplasticcentral.com/

Marlene
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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