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Old Tue Jan 29, 2008, 03:18 PM
Birgitta-A Birgitta-A is offline
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Join Date: Oct 2007
Location: Stockholm, Sweden
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Exjade Ferritin level

Hi Marlene,
Regarding info from The Aplastic Anemia & MDS International Foundation the ferritin level should not be less than 1000. That is what I have read in many abstracts from studies about iron overload too. Both 992 and 698 as John has had could be too low.

http://www.aplastic.org/aplastic/dis...26e76264fc0ea9

“…Typically, physicians would want to comprehensively evaluate whether there was any contraindication to increasing the Desferal dose a little to see if the ferritin levels could be brought down into the 1500 to 2000 range or even maybe a little bit lower…

… If the patient responds to therapy and no longer requires red cells, the risk of side effects from Desferal or Exjade, especially retinal (vision part of the eye) and nerve damage is increased when the ferritin is less than 800. That might be a reasonable time to stop if there are no ongoing transfusion requirements…”
Kind regards
Birgitta-A
68 yo, MDS Interm-1 dx May 2006, RBC transfusion every 6th week, Desferal 4 days after transfusion, Neupogen 2 injections/week
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