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Old Wed Oct 10, 2007, 09:58 PM
Zoe's Life Zoe's Life is offline
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Join Date: May 2007
Location: Logan, Ohio
Posts: 127
Let's start with what do you know so far? What was his blast count at the first BMB? Are only his red cells affected? How are his platelets and whites? What does his hgb run? Has he needed transfusions? Have they tried Aranesp or Procrit? How long was he on the Revlimid? How old is your dad? Is this primary MDS?

5q is generally more indolent than other types of MDS as long as the blast count stays down, although it is often transfusion dependent.

So far I have only been on Aranesp. It has been almost a year since my dx.

Sorry so many questions, but maybe it will help folks answer your questions.

Zoe
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Diagnosed MDS-RA 5q- at age 47 (November 2006). Aranesp 2/07, good response.
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