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Thanks Hopeful. This is all very helpful and very good idea about the spreadsheet. I will create one tonight to send to my brother-in-law.
Tracking of everything is super important. She was turning yellow because of bilirubin which we had read online could be an effect of the cyclo however the doctors wanted to test everything else so they did an mri and then an endoscopy but found nothing. There were some complications from the endoscopy which caused pancreatitis and now low calcium so they are watching that. She can't seem to catch a break.. the complications are not related to the AA so that is a plus and she still has enough cyclo in her blood to work with the ATG so fingers crossed. She was in ICU over the weekend but doing better with the hopes to be moved in the next day or 2 and then go back to the main issue - the AA - thank God.
Will write an update... thank you for all your knowledge and support.
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