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Old Mon Dec 19, 2016, 07:08 PM
Hopeful Hopeful is offline
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Join Date: Jan 2009
Location: California, USA
Posts: 766
Quote:
Originally Posted by shellybean View Post
So I had my results from the various tests they did and they are all normal.
Apart from the bone marrow biopsy, obviously. My doctor said that he doesn't know what is going on, but leukaemia has been ruled out so that's good. He said it could be aplastic anaemia but it doesn't all seem to add up. He is referring me to a professor in London, Judith Marsh. They'll do all the tests they need to do in one day so I probably only need to go there once hopefully, as it's a few hours away. Has anyone on here been referred to this specialist? Of has anything like this happened? It seems like I'm a bit of a medical mystery, and while I'm glad they've ruled out cancer, I am a bit perplexed that they don't know what's going on.
You are in good hands. Dr Marsh is an expert in AA. One of this forum's big success stories (squirellypoo) was treated by her.
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55 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
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