Thread: new to site
View Single Post
  #4  
Old Sun Jan 1, 2012, 07:46 PM
Susan Susan is offline
Member
 
Join Date: Sep 2003
Location: Chicago, Il
Posts: 101
Marc Update?

Hi Marc, back here again more often. I'm sorry I haven't kept up with any new treatments you may have tried, last you told me you were waiting and hoping for your (2nd round?) of ATG and long term cyclopsporine to kick in.

Have you read some of the successful and a couple of unsuccessful Campath treatment stories around this site? Gives me some hope in case ATH/cyclo doen't work for us. The treatment is far shorter ( no cyclo needed) and side effects not nearly as bad. Keep in touch!
__________________
AA/PNH Dx 1998, Warfarin, Soliris
Reply With Quote