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Old Mon Oct 21, 2013, 08:56 AM
Mary4Mike Mary4Mike is offline
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Join Date: Oct 2010
Location: Michigan
Posts: 68
Deb,

So happy to read about the outcome, so far, of Doug's journey. It sounds so similar to my husband's. Mike's transplant was the same time of year as his, October 1, 2009. I will pray that he has the continued renewal of health as did my husband.

His protocol sounds similar - no TBI, but also, no ATG. He did a clinical trial of Vorinostat - 30 days prior and 30 - 60 days post transplant (I think) for GVHD. He has had very little GVHD and he is off all meds and has been for quite awhile.

May Doug have continued recovery. It is possible to have life beyond MDS. We do, and we thank the good Lord everyday!

Mary
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Mary, wife of Mike age 70; diagnosed MDS RARS 1999. Tried Vidaza, Revlimid, and Dacogen. SCT 10/1/09 at U of MI; induction FluBu2; sister perfect match donor. 5 years out, little to no GVHD. Off all meds. God is good
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