Kathyete,
I am sorry you are having to go through this. I am wondering though, why have they taken your mom off transfusions? Is there something else going on?
I recall a similar post on another board. If I recall the answer was that the patient simply started sleeping more and more. That is all I can recall.
I hope you are taking care of yourself. It sounds like you really need it.
Zoe
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Diagnosed MDS-RA 5q- at age 47 (November 2006). Aranesp 2/07, good response.
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