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Old Mon Jul 16, 2012, 12:46 AM
Hopeful Hopeful is offline
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Join Date: Jan 2009
Location: California, USA
Posts: 718
I wouldn't delay starting the cyclosporine, as it takes a few months to see the results. You could always try the alternative medicines in parallel (after carefully checking for interactions). If she has an immune attack going on, the sooner she starts treatment, the better chance of it working.
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52 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. Tried slow cyclosporine taper over 4+ years. Platelets fell, so back on cyclosporine. Trisomy 6 clone in 5% of cells.
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