Hi, Dana. We were at SCCA in December for a consult. No news there. So we do treatment here in Spokane. There will be a patient and caregiver conference on June 21 which I read about in the AAMDS.org site. I will be there for that.
The Seattle support group is not functioning right now. I made contact and was told someone else needs to take over. But hello to you. We can be in contact privately. Husband is getting a transfusion today.
Caregiver for husband