Thread: Guillan Barre
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  #3  
Old Fri Jan 11, 2019, 10:49 PM
Hopeful Hopeful is offline
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Join Date: Jan 2009
Location: California, USA
Posts: 718
Dan,

I am so sorry to hear of this unfair complication! It is good that they caught it early. Do your doctors think the duration of the syndrome will be shorter because of your limited immune system?

Sending healing thoughts and payers your way...
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52 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. Tried slow cyclosporine taper over 4+ years. Platelets fell, so back on cyclosporine. Trisomy 6 clone in 5% of cells.
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