Originally Posted by shadowii
ok after many tests, they know its not clot, bone or tissue damage or any sort of infection (they did mri, sonogram, etc)
they think its related to the line they put in him
has anyone recalled a situation like this (they are considering giving him oxycontin)
I would be really cautious with starting him on oxy, given how addictive it can be. If they suspect his pain may be nerve related, I would talk to his doctors about trying Botox injections to treat it. I am not an expert but have heard of people that had success with this.
52 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. Tried slow cyclosporine taper over 4+ years. Platelets fell, so back on cyclosporine. Trisomy 6 clone in 5% of cells.