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Francine
My husband had liver problems with Exjade which he started at a lower dose. Because of the holidays he did not have a weekly blood test and within a month he had hepatitis. When his liver counts were normal he tried again at an even lower dose and the count shot up in a week. His liver is sensitive but his counts are normal while using desferal. He is so determined to control the iron that he chelates both day and night for three doses. That way he avoids leaving the canula in for more than two days when he often had bad staph infections.
Your Mum is not young and would probably have trouble managing the chelation on here own. We know of a lady aged 88 with a ferritin of 14,000. They give her an infusion weekly at the hospital but it is obviously not enough.
It is very hard to manage meds if you are elderly and we will all be there one day.
best wishes
Helen
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Husband, MDS 5q- 2003. Transfusions,desferal infusions, Revlimid 2007 partial remission. David passed away Nov 2010 with untreatable heart arrythmia probably from iron overload.
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