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I'm not sure
I'm not sure if this is where I belong. I was diagnosed with P-Vera 15 years ago when I was 37. Have been on Hydrea since, with several years of inter-feron. I Developed blood clots, after several years and several bone marrow biopsies was told I had myelofibrosis and another biopsy several years later showed MDS. After clots formed while on coumadin I was diag. w/ Antiphosphalipid Antibody Synd. I developed Heparin Ind. Thrombocytopenia and started daily injections of Refludan. Changed to Arixtra injections a year ago. I also have ITP and hypothyroidism. Since my counts don't look like MDS they can be very high and then very low, I am not sure if there is anyone out there that deals with this combination of diagnosis who could share some of their stories.
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