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Old Tue Oct 25, 2011, 02:08 PM
ewagirl12 ewagirl12 is offline
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Join Date: Oct 2011
Posts: 4
Quote:
Originally Posted by Greg H View Post
Hi y'all!

I've just been invited up to NIH for screening for the Danazol trial. But I have MDS instead of AA and my mutation is in TERT instead of TERC.

I look forward to comparing notes about the trial, assuming I make it through the screening.

I'm not too worried about growing a beard, since I've had one since Junior year in High School, but it would be nice if the Danazol put the hair back on the top of my head!

I've been reading some of the NIH journal articles on telomeres and wrote up what I found out so far here.

Let me know if you run across anything interesting. I see some of you have had family members tested. I was wondering if that's something I need to do. The articles make it pretty clear that the TERC and TERT mutations can run in families.

Take care!

Greg
Hi Greg,

Hope you made it to the clinical trial. I have two more days left for tests.

Any updates on those who started the Danazol already?

Thanks.
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33 yrs old, diagnosed ITP in 2006, moderate aplastic anemia 2009, no transfusions, TERC mutation.
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