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Old Wed Oct 26, 2011, 12:09 PM
Lou K Lou K is offline
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Join Date: Oct 2011
Location: Johns Island, SC
Posts: 5
entering Telomere protocol in December

Just made my appt for NIH to do tests and reevaluation to enter Protocol. I will be going in December. I have concerns about going on Danazol. Any comments from women going on it? I have AA and Pulmonary Fibrosis. Mutation is in TERT area and the first kind they have seen. Doctors have concluded my father, grandfather and Paternal aunt died prematurely from this condition assuming this from using their autopsies and oral medical history from me and my mother. They all had AA, PF and Liver disease. They are testing my daughter and my sister to see if they are carrying the mutation too.
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