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Also I just remembered there is a new drug in clinical trials that is supposedly going to be better then Solaris called TT-30. Alexion just bought the rights to that med (Solaris is owned by alexion) if I remember right they are working on getting participants that have not been on Solaris. I think its in trial phase 3? I can see if I can get that info emailed to you if you want?
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Heather, wife of Ronald 36; dx PNH 2012; Dx VSAA 2013; eculizumab(Solaris) hATG 2/20/13 cyclosporine 400 mg daily. 37 units RBC and 15 units of platelets. Post BMT -pentam,vorconizole,valtrex, valcyte, actigall, Pepcid , prograf, magnesium.
10/10 MUD 10/10/13
Now no PNH or AA. Mixed Chimerisim
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