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Old Fri Apr 15, 2016, 01:45 AM
DanL DanL is offline
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Join Date: Dec 2010
Location: Denver, CO
Posts: 590
Amy,

I did not see any blood counts posted for your father, but one thing that is a documented phenomenon in MDS patients is neutropenic fever. It is a fever of otherwise unknown origin that seems to be tied to a lower number of neutrophils. this usually goes away when the patient produces and keeps more neutrophils. During transplant, it seems like you hit the low spot around day 6-13 and then start recovery sometime thereafter, usually by about day 20. Not sure if this is the case, but it might provide some explanation.
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MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
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