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Hi Paul,
I had very similar symptoms the whole time I was on Prograf or Cyclosporine. I would say it resolved within a couple of months after weaning off of those. It was definitely annoying and worrisome but it does get better assuming that is what is causing yours. Hopefully you will get some relief soon!
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Chandra, 40 y/o wife and mother of 2 girls; DX SAA Dec 2013; H-ATG Jan 2014; Prior to ATG:HGB 8.3, HCT 24.3, Platelets 10, WBC 1.9, RBC 2.67, ANC 100; April 30, 2014 matched sibling donor BMT; currently off meds and counts are normal!
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