Thread: treatment plan?
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  #15  
Old Wed Jul 27, 2016, 11:31 AM
PaulS PaulS is offline
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Join Date: Sep 2014
Location: New York
Posts: 247
Hi Dan - I don't have all the BMB results back - but the flow cytometry was worse and I have skin nodules (Sweets Syndrome) previously associate with my disease - so they think I'm relapsing. Planning to start AZA next week along with Venclexta and see how it goes. I'm encouraged that you responded so well to the AZA even though you hadn't previously - I'm in a similar boat - so you give me reason to hope I'll respond the second time around. Thanks again for your support.

Good luck with the dogs, Bailie!

p
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Lower risk MDS diagnosed 2012. Recurring skin nodules treated with prednisone, otherwise watch and wait. HG dropped from 11.5 to 8.7. Kept going down to 5. Vidaza didn't work. BMT from MUD on September 10 2015
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