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Old Wed Jul 10, 2019, 12:47 AM
DanL DanL is offline
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Join Date: Dec 2010
Location: Denver, CO
Posts: 590
Quote:
Originally Posted by shadowii View Post
its just hard not to imagine the worst scenarios I have to ask what were the signs before you knew you were relapsing?
To your question, all of my blood counts were dropping rapidly and I was exceptionally fatigued, and somewhat angrier than usual - not sure if that was a symptom. I had biopsies done every 3 months and the one that I had at that point showed chromosomal abnormalities, which confirmed a relapse.
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MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
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