[sbk007]

Hi all, I am 54 went for my annual physical on 2/5/13 & got a call next day my cell lines were low. RBC,WBC platelets. Hemoglobin was @ 11.3. Confirmed 2weeks later when 2nd blood test showed hemo was now 10.8, WBC returnedto normal but platelets still low. 50k I think. Went to hemotologist 2 weeks later wbc fine but globin 8 ish. Bone marrow biopsy came back w/MDS bad chromosome 7. No treatment, 15 months prognosis.
Sent to Cornell/weil met w/ hematoligist who was unusually upbeat. His plan treat w/ clinical trial sgi 110, then stem trasplant, and your done. Turns out the clinical trial is to test theMTD of sgi 110(astxdotcom). Reading about dacogen & other treatments for hi risk bad chrome 7 I am seeing only 16 % repond, and I cant find how long it actually extends the onset of death or ALM. Tommorow I meet with a stem cell specialist @ cornell/wweil. With the prognosis so dire why risk treatment other than the stem cell trans? Is it a good idea to get a second marrow biopsy done by another lab this one was sent out by the hematologist not the cornell/weil hemotologist? Id feel beteer knowing 2 labs found the same thing. The specialist @ cornell/weil says no the report was done well... Im leaning towards no treatment as I cant find anything that suggests that any of these things work for hi risk bad 7 chromosomes. Im also wondering why no 2nd biopsy to confirm the 1st one. Way I figure it the odds of a 54 yr old getting MDS of this type are well in the stratosphere so how could a second biopsy be so far fetched? TIA.