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Old Sat May 17, 2014, 06:45 PM
rar rar is offline
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Join Date: Mar 2014
Location: colorado
Posts: 215
Quote:
Originally Posted by sbk007 View Post
Hi Birgitta, The way I read that paper it sounds like there is not a group in that range that get cured. The Average is 36 months compared to the group that didn't have transplant which is 28 months. This is why I don't understand the publication. There is no conclusion section just the statistics.
The report lumps together too many groups. I am in the IPSS-R category of very high risk with a median life expectancy of 9.6 months, and who knows when the clock started ticking. So 36 months with a transplant doesn't look that bad. And there is the hope that I will be among the 25 to 50% who live a near normal life span. The difference is not always 6 months as implied. Two weeks into the AG221 clinical trial with no change so far. They were not expecting results this quickly.

Ray
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