How are your red cells today
Did the SCT restore you counts....If your HGB is at or above 11, I would recommend you try theraputic phlebotomies. John did them with a HGB of 10. He stopped them when Exjade became available. Oh, I assume you are transfusion independent.
Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of January 2017, FE is 233, HGB 11.7, WBC 5.1/ANC 4.0, Plts 90K.