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Old Wed Jun 8, 2016, 01:27 PM
Data Data is offline
Join Date: Sep 2014
Location: Florida
Posts: 245

Originally Posted by PaulS View Post
Hi Data - good luck with the clinical trial - when do you start?

How are you feeling now? How are your counts? How's the GVHD fight going?

This was a tough period for me - hope you're doing well.

I did start the trial. They took the blood sample yesterday and I should know within a week if I will be getting the lenalidomide or not. They pretty much have the GVHD under control - it isn't getting any worse and it is vastly improved from when I first had it. My platelets took a nose dive and the doc is working on that - he said he will probably adjust my meds on Friday. I currently have two viruses - CMV and BK - that they are working on. I am still just incredibly tired. I wish I had never opted for the transplant.


Prostate Cancer: Treated in early 2013 with HDR Brachytherapy. MDS-RCMD: Oct 2014. Biopsies: 46,XY,t(7;18)[2]: 46,XY,del(7)( q22)[3]: 45,XY,-7[6]: 45,XY,-7[10]: 45,XY,-7[13]. HSCT in April 2016.
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