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Old Fri Jun 8, 2018, 09:35 AM
Pearl Pearl is offline
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Join Date: Feb 2016
Location: New Jersey
Posts: 18
Quote:
Originally Posted by maggiemag View Post
Hello MDSmom,

Well, only your doctor can really give you answers; I'm a patient myself. But it seems to me that her blasts being down to 2% is a very good response. Counts can go down quite a bit in the beginning of treatment, but improvement in her counts plus the blast % would be the main ways to judge response. Her platelets have improved; I think there's quite a difference from 8K to 32K. Sometimes cytogenetics in the bone marrow can improve which would also signal a response.

I think I've read that you must give Dacogen or Vidaza at least 6 cycles to see if it's helpful. I have also read that the drug needs to be continued indefinitely until it stops working, which could be years. Counts crashing and staying down, peripheral blasts, increase in bone marrow blasts would all point to the drug stops working.

Hope this helps some, and please keep us posted.
Margaret
Mags

Your posts are always so useful. You have been at this a long time, and I remember that you are a retired RN. Are you associated with the MDS Foundation?
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