Hi Honey, sorry to see you're getting the public hospital run around. Can you see a consultant haematologist privately in his rooms using Medicare and then just attend the hospital for any treatments or investigations you might need?
I know Perth hospital has a good reputation but like all public hospitals you only get to see the consultant if something is wrong and you don't want that.
For the benefit of our international friends on this forum.....Perth is over 3000 kilometres away from the nearest specialist cancer centre.
Australia's population is only 23,000,000 spread over a huge land mass and Perth is the greatest distance from the east coast and most of the specialist cancer services.
Honey, have you joined the Leukaemia Foundations "Talk Blood Cancer" telephone forum? If not, I suggest you Google it and email them. People with MDS from all over Australia can get together and talk to each other once a month for the cost of a local phone call. They also have guest speakers on various topics from time to time.
Hope to speak to you soon.
