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still on steroids
Hello, I am still having GVHD and I'm 2.5 years post transplant. I have been on prednisone for all but 6wks of that time. I am on the other meds too but every time we try to discontinue to steroids, I have a major rash and start having gut issues. I have been weaned down to 20mgs but that was 6 months ago. We have tried every anti rejection meds out there. My next step is the procedure that she is talking about but only a few hospitals do it.
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