[BrianFlaigmore]

Thank you for the responses.

I hope that they find something for you soon. The bouncing back and forth on the steroids is my least favorite part these days. Do you have side effects from the prednisone? How are your muscles?

For me every time the pred. gets increased, my Dr. puts me on voriconazole, which I am not a fan of, which also makes the tacro and siro numbers jump. Are you in a similar boat?

My doctor does not want to try the photophoresis at this point as it requires a line (is that correct?).

Last week he started me on Tacrolimus cream for the blotches on my face. They have disappeared completely and now we are reattempting a slow taper. I hope it holds! Does anyone have any success or information about the tacro cream? I have heard that it is not good to be on for a long period.