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I am asking this totally out of curiosity and not wanting to come across snide in any way: If you are having a transplant in the near future, why are you continuing with Vidaza? Don't they want your counts to be recovered as much as possible prior to transplant? Are they thinking that maybe the Vidaza will kick in and you won't need a transplant? Your reaction to Vidaza brings back the memories of how Dacogen effected my husband. Complete knockdown of counts and hospitalizations with pneumonia 3 times. He was never able to begin his cycles on time because of these problems. He had a good experience with Vidaza and also with transplant. I pray that you will also have a good outcome.
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Mary, wife of Mike age 70; diagnosed MDS RARS 1999. Tried Vidaza, Revlimid, and Dacogen. SCT 10/1/09 at U of MI; induction FluBu2; sister perfect match donor. 5 years out, little to no GVHD. Off all meds. God is good 
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