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Hi Birgitta-A,
Thanks for your reply and for the Nordic MDS group. You always have good information. I have also read about EPO + G-CSF(same as neupogen, I think) improves chances of response. But the doctor insists that theoretical information and practical experience is different and that my mother does not need G-CSF. Since EPO is the only treatment that she can get, I think the doctor should give it another try, with Neupogen, I hope I can convince him. I will carry a copy of this information to our next appointment.
Thanks v much
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Mother age 79, dx MDS RCMD low risk del 20q April 2013, no response to EPO, Danazol. pRBC tx dependent - 2 units every 3-4 weeks, exjade Dec 2013 - Mar2014, restarted Dec 2014
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