[GoodDay5150]

Hi Bailie. I believe that my chimerisms were at 100% when they did my 1st bmb after my transplant. Yes, my #'s went to normal in a fairly short amount of time. I never had any blood other than when I was in the hospital and I never had any meds to increase my white count. I did have photo treatments and meds for GVHD. I was taking Nilotinib which is usually used for leukemia, but dr's have found that it can also be used for GVHD. My energy level is mostly good, but I had PNH symptoms for so long, I forgot how normal should feel. I thought that my fatigue was because I was low on testosterone, and a GP who did a blood test found my hemoglobin at 7.4! So by that time in 2011, I prob had PNH for 8-10 yrs.