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Old Thu Feb 28, 2008, 04:23 PM
Ruth Cuadra Ruth Cuadra is offline
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Join Date: Jul 2006
Location: Los Angeles, California
Posts: 616
Dear Scott,

It's so generous of you to record your father's experience for those who end up on the same path in the future. He's a lucky man to have you out here looking for information and options for him and to have his family nearby.

Do you know what the cause of his swelling is? Often it is the result of congestive heart failure, which in his case might be the result of his having to deal with decreased hemoglobin over a long period of time. Lasix can help reduce the strain on his system from so much fluid and make him more comfortable as well. Is it possible to increase the frequency of his transfusions so he doesn't get so low that the shortness of breath and weakness are so difficult to deal with?

Regards,
Ruth
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Diagnosed AA 10/96, MDS/RA 6/98, MUD/BMT 10/6/98
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