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Thanx for the "flu shot" info
Thanx for your advice--I'm going down to get a shot today! From all the things I've read, there were more responses to get one than not!
In answer to you questions re: dacogen; I think they chose that drug because my doctor's group (in Asheville, NC) had had such success with it and I had no chromosome defects and completely healthy otherwise.
Began dacogen when first diagnosed in june '09; was very sick 1st 2-3 months with low counts of 7 hgb; 15-20 platelets; 1 wbc; 5 blood & 6 platelet transfusions; after second round of dacogen nos. began creeping up and jumped WAY up after the 3rd round. The nurse explained that it usually takes 2-3 or maybe more in some patient to get enough of the drug in your system to show improvement. I've had completely stable counts (except for my white count which varies from 2-3.8) for about 22 months now. And no transfusions since that 3rd round of dacogen. (P.S. Yes, I did have the have a few Procrit shots during those first couple months). Also,relatively no side effects!
Thanx for your comments. Take care (where are you in the southeast?)
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66 yr female;diag 6/09; MDS, unspecified, normal cytogenetics: blasts 10%; successful Dacogen;every 4th wk.; as of Aug.'12 changing to every 5th wk., stable at Hgb 12-14/platelets 200-300/wbc 2.-3.
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