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Old Tue Nov 11, 2014, 12:51 PM
amyangel amyangel is offline
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Join Date: Jun 2014
Location: Wisconsin
Posts: 64
Hi all,
. After seeing Doc today I am now scared .
He told me he doesn't think the transplant is working due to Amy's enlarged spleen.
Usually by day +30 they see mostly donor in ANC and they still see 90% Amy . They are giving her 3 more weeks, sometimes it can take a little longer . between 30 and 42 days after transplant they start to see a change for the better in her ANC .. Amy is still only at 1.13 .

I asked what next ? He Said, he would like to try the transplant over but this time she will get radiation of the spleen ... he thinks the spleen is still eating her ANC cells up .

we would go home for about 6 weeks and then come back here to do it all over again .

She is still eating and drinking and Happy !!

Amy spent two night in the hospital due to some junk in lungs Day + , 32,33 ,34 and released on Day + 34 after getting all kinds of antibiotics.

We demanded a phenobarbital seizure med level check and she was toxic which now I know why she was so sluggish 75 which it should be in the 30's .

Please keep her lifted up in prayers this is going to be a long road .
__________________
Mother of a daughter 27 with MDS . Cognitively delayed at birth 1987 , seizures 5 days old . pancytopenia 2006, AIHA 2013, EVANS 2013 , CVID 2013, ALPS 2014. MDS 2014
8/18/2014
WBC .3 , hemoglobin 7.3 , hematocrit 2, platelets 60 , neutrophil .21 Mag 1.6, Potassium 4.6
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