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Hi Bossywife - Your husband's experience sounds similar to Dave's. In late 2016 his counts started a downward trend, but nothing too alarming until he just hit a wall. Up until December he had been plugging along, recovering from some significant surgeries, but feeling relatively good. By month's end he was doing a lot more sleeping and had no energy, could barely walk to the mailbox. After the first of the year headaches and fevers were added to his list of miseries. Long story short - after a week long stay in the hospital to rule out infections he was started on Vidaza. The doc said that even though his blasts were at 5%, all of his symptoms were a sign that the disease was progressing. The first two months he was on treatment he couldn't even walk in the door to the doc office to get his shots, we were transporting him via wheelchair. We fully expected to have to go to transplant in 2017. But after such a great response to treatment and without a MUD we have opted to continue on with the Vidaza. With your husband having a related donor, his course of treatment will likely differ. Best to the both of you....
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