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Old Thu Oct 13, 2011, 06:14 PM
donna j. donna j. is offline
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Join Date: Sep 2011
Location: long island, new york
Posts: 110
I'm so so sorry what you and your daughter are going through. Unfortunately, I have no knowledge to share with you, however there are some pretty impressive people on this forum and I hope they can enlighten and give some direction. I just wanted you to know you are in my thoughts...........
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f68 MDS; abmt 1/12. ABO mismatch 11 mos. (70) transf. Ferr 3-5k. 8 phlebot. AGVHD to CGVHD. skin,eyes. lungs as of 10/13. muscle weakness &osteo long term steroids.photopheresis 2x wk as of 3-15.pred 20 eod,acyclovir, mepron, voriconazole, pantropazole, lisinopril, montelukast, anoro, azithromycin.
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