Aplastic Anemia
My daughter is 16 and a IB student in the 11th grade, 4.8 GPA and is a scholar athlete in softball. She was diagnosed with AA in July 2015. We went from some what a normal everyday life to trying to learn what AA is all about.
She has been going to the hospital 1 to 2 times a week since. She has had the 4 day ATG treatment and is now on meds 2 times a day.
She has a great awesome attitude. She know this could be a lot worse and is thankful everyday that its not. She is now a home bound student right now and cannot play any sports right now. She has had a total of 34 platelet transfusions and about 17 blood transfusions. This has been very tough on us as parents and our 9 year old son. We all have our ups and downs and sometimes we all our frustrated but know that she has not gotten worse. It seems some weeks she take 2 steps forwards and the next week its 1 step backwards. We pray a lot and ask god to do his will.
Any advice anyone.
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