Thread: going on exjade
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Old Thu Apr 19, 2012, 12:59 PM
amberb amberb is offline
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Join Date: Aug 2011
Location: Jacksonville Beach, FL
Posts: 21
I'm not sure what my FE count is, they are going to check that next week and then discuss going on the exjade. This week my HGB was 9.9 and my last transfusion was 3/30, but I was having them more often before my second treatment of ATG. My Dr told me that once you hit that mark of having had about 20 transfusions you need to go on the medication. I think I've had that many, if not more over the last 9 months. I don't know anything about the dosing of the medication, I'll just have to find out when I follow up next week.
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Amber, age 24, diagnosed w/ SAA and treated w/ horse ATG 7/11, rabbit ATG 1/12, on cyclosporine. Started Desferal infusion for iron overload 7/12.
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