I haven't kept up with Exjade since John stopped it but back then, they don't recommend starting it unless your FE is 1000 or greater.
Dosing is based on weight. You can look up the drug and become familiar with the dosing, side effects and precautions. This is a good thing to do before your appointment so you can get your concerns/questions answered before you start taking it. http://www.rxlist.com/exjade-drug.htm
John never got to a full dose because of side effects. Make sure you get a baseline chem panel done before starting. Exade can effect the kidneys and in rare cases, your counts. You should get a chem panel drawn monthly while on Exjade to monitor the effects.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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