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Hi All!
The Exjade package insert basically says it's not a good idea to continue it is the ferritin level is consistently below 500. It also notes that side effects -- particularly kidney and liver issues -- were more common among folks aged 65 or older. Most studied in that age group were MDSers.
As other have noted, your doc will want to monitor your kidneys and liver as well as ferritin. The package insert suggests having a standard vision test and a standard hearing test to establish a baseline before starting Exjade.
Take care!
Greg
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Greg, 59, dx MDS RCMD Int-1 03/10, 8+ & Dup1(q21q31). NIH Campath 11/2010. Non-responder. Tiny telomeres. TERT mutation. Danazol at NIH 12/11. TX independent 7/12. Pancreatitis 4/15. 15% blasts 4/16. DX RAEB-2. Beginning Vidaza to prep for MUD STC. Check out my blog at www.greghankins.com
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