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Exjade question
My doctor wants me to start Exjade, as my ferritin is now over 3600. However, one of the black box warnings for Exjade contraindicates it for those whose platelet count is under 50(K), which mine is (thrombocytopenia is a big problem for me). My doctor's office is looking into this. From what I gather, the bleeding issues for those with thrombocytopenia while on Exjade are rare, and seemingly somewhat age and comorbidity related. I am quite healthy (except, of course, for this bone marrow issue). Has anyone else run into this issue when being prescribed Exjade? Maybe I should try wheat grass first? Thanks so much!
Marmab
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Marmab, F65, SAA/hypo MDS dx 7/2011. Tried ATG/CsA, IvIG, Rituxan, prednisone, Promacta -- none of these helped. Transfusion dependent until MUD BMT 7/17/14. Prep. regimen of Campath, Fludarabine & Cytoxan. Doing great. 100% engraftment. No GVHD.
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